Login with username, password and session length

Search:     Advanced search

Help Register
The ABC Café  |  Public Forum: Dealing with Bone Cancer  |  Life after treatment  |  Topic: Effect of chemotherapy: Neuropathy « previous next »
Pages: [1] Go Down Print
Author Topic: Effect of chemotherapy: Neuropathy  (Read 3794 times)
Michelle
Caregiver
Loudmouth
*
Offline Offline

Posts: 437



WWW
« on: December 08, 2005, 05:19:16 AM »

Someone on a diabetic list I am on wrote this and I figured it might be worth a try for some that have complained about this problem:

the ALA (Alpha Lipoic Acid) that i've
been taking at 600mg day has done great things for the neurapathy in my
toes. HIGHLY RECOMMEND IT.
Logged

Michelle
Spouse of Chris
Osteosarcoma, primary tumor in the HEART
Deceased RIP 6/3/68-8/13/06
Celeste
Survivor
Loudmouth
*
Offline Offline

Posts: 354



WWW
« Reply #1 on: December 08, 2005, 10:08:09 AM »



   Hi Michelle,

    Thanks, for the info. I have neuropathy, but they don't know what is causing it yet. I know it's not nerve damage or diabetes. I will look up that supplement.


  Thanks,

   Celeste
Logged

Celeste
2003 Chrondrosarcoma, femur,allograft,no chemo
2000 Breast Cancer, chemo
All Clear!!
Charlene
Survivor
Chatty Member
*
Offline Offline

Posts: 91



WWW
« Reply #2 on: December 09, 2005, 02:30:46 PM »

michelle - defiantely worth doing some research on. 

thanks
char
Logged

Charlene
5/96 osteosarcoma distal femur
chemo - MTX, adria/cisplat, IFOS
9/96 - limb salvage surgery, 12/97 - TKR, surgery x 5
currently NED (no evidence of disease)
Kelly_Marie
Survivor
Loudmouth
*
Offline Offline

Posts: 149



WWW
« Reply #3 on: October 28, 2009, 05:12:46 PM »

Looks like 2005 was the last time this topic was discussed.  It was worth reading into for me because the pain I experience daily has been described as neuropathic pain. 

Then a week ago my pain management team brought up a new name for the old pain- rsd or reflex sympathetic dystrophy.  Interesting research on the definition- it doesn't change the treatment protocol the team is working with me just a name to the pain.  Only, IF it is RSD and when the initial pain began within 90 days of the onset on pain the treatment during that time may have ended the rsd pain.  Instead of the 7 years we have been working, excuse me, I have been working on reducing the pain:)

So, for some of you guys ending your sarcoma protocol if after a year or so pain feeling like burning, extreme sensitivity to touch, skin color changes, temperature changes extreme, fatigue, joint pain,  it may be rsd.  Cause can include, radiation therapy, trauma, surgery. 

Good luck and blessings,
Kelly
Logged
Cathy
Co-leader
Loudmouth
*
Offline Offline

Posts: 1552



WWW
« Reply #4 on: October 29, 2009, 08:29:03 AM »

Kelly, I have RSD in my feet - but acupuncture is really helping me a lot with the pain.  I also go to a pain clinic, but they are anesthesiologists and want to constantly do a "procedure" on you (put you to sleep and inject cortisone, or other agents into the area where the pain is, or also into the spinal canal.)  Also, of course, they give you practically anything short of cocaine for the pain.  Thanks for bringing up the subject.  I'm sure it will be helpful to others on the forum. Take care.

Hugs,
Cathy
Logged

Cathy, Osteosarcoma survivor - tumor at the pelvis
2/2004 - Limb Salvage Surgery/Hemipelvectomy, Chemo
NED
Pages: [1] Go Up Print 
The ABC Café  |  Public Forum: Dealing with Bone Cancer  |  Life after treatment  |  Topic: Effect of chemotherapy: Neuropathy « previous next »
Jump to:  


© 2005-2008 Mary Sorens. All rights reserved. Contact: info AT abc-survivors.net
Powered by MySQL Powered by PHP Powered by SMF 1.1.10 | SMF © 2006-2009, Simple Machines LLC Valid XHTML 1.0! Valid CSS!