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The ABC Café  |  Public Forum: Dealing with Bone Cancer  |  Life after treatment  |  Topic: A wonderful book for life after treatment... « previous next »
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Mary
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« on: March 06, 2006, 04:45:44 PM »

Dancing in Limbo : Making Sense of Life After Cancer
Book Review

When you visit the health section of your local bookstore, you'll find a plethora of information about getting through a cancer diagnosis, and very little about how to adjust to life after cancer. I believe that survivors are leaving our hospitals in droves – unprepared.

When a cancer patient “graduates” from treatments, she may leave the hospital floor amidst claps, cheers, and balloons. Her loved ones can finally breathe a huge sigh of relief, for she is out of the worst danger. Everyone wants to celebrate and then get on with LIFE!

But the feelings inside the patient leaving the crisis behind may be those that she never expected: anxiety, fear, uncertainty, confusion. She leaves the constant medical care that has saved her life. She leaves attachments that grew when she was under incredible stress. She enters a world where everything is okay, but she doesn’t feel okay. What does she do next? What meaning can she add to her life after all of this? How does she make sense of everything that she has learned because of cancer? How does she relate now to her healthy friends when she feels tired, hurting, different, or disabled? These are the issues cancer survivors dance with for the rest of their lives.

This book addresses, in a personal and realistic way, the effects of cancer on our lives - after treatment is finished. The authors interviewed dozens of cancer survivors and received the candid responses that you’d expect from those who have been through it all and want to help others.

One of the most interesting parts of the book for me was the discussion of how people handle trauma psychologically. It helped me understand the different approaches we each take to cope and make sense of a cancer crisis. I am now more accepting of others who view their cancer experience in a different light than I view mine.

I also came to a deeper awareness of how my cancer affected my loved ones, how the process of dealing with diagnosis and treatment is so different for them than for the patient. This showed me why my loved-ones may not fully understand, or want to think about, what life *after* cancer is like for me.

As a bone cancer survivor, the one negative thing I can say about this book is that when I got to the end, I realized there is one chapter missing. It applies to those of us who are dealing with significant phsyical disabilities and pain after cancer. But most survivors don't necessarily face this challenge. So that last chapter is being written everyday by the survivors here on this site.

If you love someone who is finishing treatment, or if you have finished treatment within the last few years, I urge you to buy this book. It may be more expensive than the other books out there, but it is SO worth it. This is the perfect cancer graduation gift! Just giving someone this book shows them that you understand their battle for a full life doesn't end with treatment. I wish I could give it to every survivor in the group.
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Mary, ABC Founder, Parosteal Osteosarcoma Survivor - Humerus Resection 12/03, no chemo
*I am not a doctor. Nothing in this message is medical advice. Please consult your physician.*
Cari
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« Reply #1 on: March 07, 2006, 12:08:27 PM »

WOOHOO Mary  I agree
I only read the first chapter when I was at Mary's House and it hit so many issues It was hard to put it down!!!!
Cari
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Cari, Osteosarcoma survivor, diagnosed 8/2003
lots of chemo, 1-6-04 limbsalvage rt knee & tibia, more chemo--
12/05-patella replacement surgery
11/06 - surgery cyst and scar tissue
3/07-rt lung mets-removed; 4/07 surgery scar tissue
3/09- lung mets removed;4/09 Above Knee amputation
AC-again
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