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The ABC Café  |  Public Forum: Dealing with Bone Cancer  |  Life after treatment  |  Topic: How long do you need to have follow-up scans after treatment??? « previous next »
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Author Topic: How long do you need to have follow-up scans after treatment???  (Read 4324 times)
Mary
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« on: May 13, 2006, 12:12:49 PM »

The answer that is appearing from almost all sources when it comes to sarcoma follow-up might surprise you.

A quote from this article: Once the course of treatment has been completed, a necessary schedule of follow up begins.  Usually, this means visits with some type of imaging and/or other ancillary testing (cardiac testing, laboratory exams, etc.) every three months for 2-3 years, every 6 months until 5 years after treatment, then annually.  Many permutations of this certainly exist, and schedules are often varied for a particular patient, predicated on many potential factors, most frequently the presence of metastasis (disease spread).  As opposed to most types of carcinoma, there is really no time when “cure” is felt to have been definitively achieved.  Sarcoma is a lifelong diagnosis, and should be treated as such. Having said this, most recurrences or metastases will be discovered within the first two to five years after treatment.  Once the patient has cleared the five-year mark, the risk of recurrence diminishes greatly, but still certainly exists.

We have several members now who have had recurrence long after treatment ended. Our newest member decided to seek a follow-up scan on his own, after his doctors declared him cured ten years after treatment, and the scan found a large spot in his lung. The chance of metastasis that far out is low, but there is still a chance. Take care of you!!!
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Mary, ABC Founder, Parosteal Osteosarcoma Survivor - Humerus Resection 12/03, no chemo
*I am not a doctor. Nothing in this message is medical advice. Please consult your physician.*
Randy W
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« Reply #1 on: July 07, 2006, 07:49:57 AM »

Thanks Mary, this topic has been on my mind alot lately since I am about to hit the 5 year mark this year.  When I asked my oncologist this very question I was told that we could probably go to a 1 year checkup soon, but that he would continue to follow me for as long as I was willing to see him....
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Randy W, osteosarcoma survivor
Garret
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« Reply #2 on: July 25, 2006, 03:02:23 PM »

Thanks Mary, this topic has been on my mind alot lately since I am about to hit the 5 year mark this year.  When I asked my oncologist this very question I was told that we could probably go to a 1 year checkup soon, but that he would continue to follow me for as long as I was willing to see him....

Randy - I got the exact same answer from my oncologists (both in Toronto and here in Dublin).  I'm now out to annual check ups (I even forgot to go in July - can you believe that?!!  So embarrassing I didn't tell anyone - its now rescheduled for September).  I would rather keep going once a year just to keep tabs on everything then to even leave a shred of chance.
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Jeanne_C
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« Reply #3 on: July 25, 2006, 09:14:13 PM »

Funny thing.....my ortho oncologist told me to expect a long term relationship with him.....that once we get past the every 3, 6, 12 month thing he wants to see me at least once a year for the next 10 years.  My oncologist, on the other hand, can't wait to get rid of me!!!   Undecided
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Jeanne C
Ewing's Sarcoma (02/05)
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« Reply #4 on: July 25, 2006, 11:03:05 PM »

HAHA  Jeanne--did you tell your onc that you feel the same way!
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Cari, Osteosarcoma survivor, diagnosed 8/2003
lots of chemo, 1-6-04 limbsalvage rt knee & tibia, more chemo--
12/05-patella replacement surgery
11/06 - surgery cyst and scar tissue
3/07-rt lung mets-removed; 4/07 surgery scar tissue
3/09- lung mets removed;4/09 Above Knee amputation
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Jeanne_C
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« Reply #5 on: July 28, 2006, 04:47:32 PM »

LOL....think I will at my next visit!!!!  hehehehehe
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Jeanne C
Ewing's Sarcoma (02/05)
Limb Salvage Surgery (06/05)
14 rounds of chemo (03/05-02/06)
Scans are all clear!!!!!!
Anna
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« Reply #6 on: November 19, 2008, 02:04:01 PM »

This is part of the reason I joined this board...I have been living in bubble and denying all of this for years. Once I hit the 5 year mark I stopped going altogether- my pediatric oncologist released me since I was then 20 yrs old, and didnt refer me to anyone new! I am a 15 year survivor right now.
 About 5 years ago I saw an oncologist when I was having heart problems, but that was it. I'm so embarrassed I've been ignoring the need to do yearly check-ups, but its just easier to pretend it doesnt exist, right? Embarrassed
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Anna
Osteogenic sarcoma rt knee/femur 93
Limb salvage/8 months chemo 93
TKR 97
numerous surgeries since, most recent realignment of tibia 07
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« Reply #7 on: November 20, 2008, 10:29:35 PM »

It is easier to pretend--But it is NOT a good idea to not have your scans!!  It is extrememly scarey when it is scan time we all talk about that all the time here--But for your well being you need to have them done!!!!  are you still able to see the oncologist that you went to for your heart?  Did you like him?  It is important to find someone that you like and then get in there and see him---let us know we have all crammed into so many dr's offices together it is not even funny---well obviously not literally but I take everyone with me when I go for my visits and for me it helps! Smiley  Have your scans then you can pretend it doesn't exist for a year until your next one Smiley Smiley
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Cari, Osteosarcoma survivor, diagnosed 8/2003
lots of chemo, 1-6-04 limbsalvage rt knee & tibia, more chemo--
12/05-patella replacement surgery
11/06 - surgery cyst and scar tissue
3/07-rt lung mets-removed; 4/07 surgery scar tissue
3/09- lung mets removed;4/09 Above Knee amputation
AC-again
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The ABC Café  |  Public Forum: Dealing with Bone Cancer  |  Life after treatment  |  Topic: How long do you need to have follow-up scans after treatment??? « previous next »
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