Haha, Matthew, don't go feeling TOO special with your custom-made knee. My humerus was custom-made too! They even picked a donor bone to wrap around it that was close to my size. Ewww...I got a custom picked cadaver. I hear it was a teenage boy, POOR GUY! Now his bone is stuck in my body, and judging from the pain, I don't think either is happy with the arrangement.
I guess if the distal femur replacement has to be hinged due to ligament removal, then a bunch of people here have hinged knees. The distal femur is the most common site of osteosarcoma, and the knee replacements are pretty standard. So you've got folks like Randy, Brian, Cari, the list goes on and on! You can read 26 different distal femur stories here
. Brian's story is among those, so you can read all about his surgery. Brian made it 13 years before needing a replacement surgery. Many of the people you will read about in the distal femur stories are members of the Cafe as well. If you want to connect with one of them, you can check our member list
for their name and send them a personal message.
I found that connecting with others who had my type of tumor and surgery was really helpful in the beginning, so I hope this info is helpful for you. For me, parosteal osteosarcoma was especially hard to find. It took months to find one person who had it. Things are different now, thanks to all of these awesome people!