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The ABC Café  |  Public Forum: Dealing with Bone Cancer  |  Diagnosis and Treatment  |  Topic: What you cannot talk about...and other thoughts « previous next »
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Mary
Be the peace you want to see in the world.
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« on: May 01, 2007, 02:46:48 PM »

I went to a really good lecture last night by Professor Charles Sabatino. He is a philosophy/religion professor who has been working with the Cancer Wellness Center for five years. Here are some of the thoughts he shared.

1. What you cannot talk about has the control in your life. What you cannot talk about is bigger than you. If you can talk about it, you become bigger than it.

2. Patients often want to connect and protect at the same time. And their spouses often find that they don't know what to say or do. Then the distance starts. So, how do you help someone begin to talk in this situation? BE AN EAR. Don’t fix, just listen. Ask questions. Create a safe place. Allow people to find their own way. Empathize, appreciate the pain, be a sounding board for it. There is no fixing it…listen.

3. Healing is truly being okay with yourself even when everything isn't okay. Wellness is about you, not just your body.

4. Many people say that life becomes more meaningful after diagnosis. There is no more sense of spirituality than to be given a death sentence and to find meaning. Finding the strength and courage to go on is spirituality. Spirituality is about discovering your capacity, your strength to go through your journey. Imagine going through the treatments without believing that it was worth it.

5. One of the most important things we do with our lives is die. There can be no life without dying, and we only die while we’re alive. The decision that we must make is that cancer isn’t going to be allowed to destroy identity and meaning in life. We can choose to spend time living, whether or not we are dying.

6. Love is how you remain when you’re gone. The love that you give and receive remains. To be able to die in the face of love is to be able to die as a part of something that remains.
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Mary, ABC Founder, Parosteal Osteosarcoma Survivor - Humerus Resection 12/03, no chemo
*I am not a doctor. Nothing in this message is medical advice. Please consult your physician.*
Rene
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« Reply #1 on: March 08, 2008, 08:51:11 PM »

Wow, his thoughts are truly insightful. I especially agree with #1. It's so important to talk, talk. I think being able to talk here on ABC has made a tremedous difference for me. I try to shield most of my family and friends from the day to day cancer stuff. On here, I can speak freely to people who know what it's like.
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Rene, Ewing's sarcoma survivor - in the left heel 1/07
2/07 - 3/08 chemo
6/07 left below the knee amputation
So far all clear.
Cari
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« Reply #2 on: March 09, 2008, 02:30:23 PM »

I agree Rene!! Its hard to talk to family and friends because they do want to FIX it all the time.  Fixing it for us is someone who will just listen.  CHEERS TO ABC!!!
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Cari, Osteosarcoma survivor, diagnosed 8/2003
lots of chemo, 1-6-04 limbsalvage rt knee & tibia, more chemo--
12/05-patella replacement surgery
11/06 - surgery cyst and scar tissue
3/07-rt lung mets-removed; 4/07 surgery scar tissue
3/09- lung mets removed;4/09 Above Knee amputation
AC-again
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